Stem Cell Update

 

Serious science playing out in medical laboratories is strange and mysterious.  Individuals in white coats , some gowned and working in clean rooms, perform specialized tasks amid the strange sounds of whirring machines unknown to most.  We spent part of the afternoon yesterday in such a place, the labs of the Tisch MS Research Center.   Though I thought these creatures looked like CIA types, they were busy extracting stem cells from bone marrow.  They showed me my cells.  There is a lot to understand.  Those cells will be infused back into my body in about one month.   We will share our video soon.  See if you can make sense of it.  I am shocked that I think I get it.

Stay tuned.

15 Responses to Stem Cell Update

  1. SammyJo Wilkinson January 25, 2014 at 1:59 pm #

    Thanks for sharing your stem cell story. Finally an MS treatment with high safety profile, and no drug side effects!
    Since you are receiving your own stem cells, cultured in a lab to reach an expanded dose, here’s the research PatientsForStemCells.org did that shows that over 2,000 patients have been treated with similar expanded stem cell treatments. These were phase 1/2 trials to establish safety – they all conclude this therapy is safe, and shows promising signs of efficacy! The Tisch trial will add to this body of evidence.
    http://www.patientsforstemcells.org/education/how-safe-are-stem-cells/

  2. Monica January 25, 2014 at 4:18 pm #

    Thank you for keeping us up to date with everything that’s happening
    The science of it all looks more complicated than it actually is. I should know, I’m working on a master’s thesis on stem cell treatments for MS. Well to be honest, I should be working on it but I haven’t made much progress. I’m procrastinating because I’m afraid I’m going to fail. It’s a lousy excuse but there it is…

    It must be a bit disconcerting to know that there are hundreds or probably even thousands of people out there hanging onto your every word because in the hands of those freaky white coated people may lie the future and right now you are our closest connection to this whole process so thank you again!

    I know you’re not holding onto hope and I get that, hope could drive you insane but if it’s all right with you I’m going to hope for you!
    MM

    • Richard January 26, 2014 at 9:49 am #

      Thank you. People like you give me so much.

      Peace,
      R.

  3. James s nielsen January 25, 2014 at 8:29 pm #

    Hello richard I’m l51years old and was diagnosed about 25 years ago. I can relate oh so we’ll to your blogs. I’ve just started gong to UCSF and I hope my doctor is familar with dr sadiqs work. Hoping that 00th00000is trial is also taking place on the west coast:.My vision is 20/200 so please excuse the errors. Best wishes ,jhopes & prayers

    • Richard January 26, 2014 at 9:51 am #

      UCFS is a great place. Your turn will come.

      Peace,
      R.

  4. James s nielsen January 25, 2014 at 8:32 pm #

    That’s 51 years old oops

    • Richard January 26, 2014 at 9:52 am #

      I figured that out.

  5. Nicole January 26, 2014 at 2:03 pm #

    I feel like a puppy waiting by the table waiting for scraps. I wish you the best!

  6. Mimi January 26, 2014 at 7:14 pm #

    Stem cell research has taken off since its scope was expanded in 2009. I worry about the 2016 general election because it could be halted just as easily as it was expanded, depending on the party platform of the candidates.

    My hope is that it will have so many successes it will be impossible to turn back. The momentum is on our side.

    • Richard January 27, 2014 at 7:45 am #

      Mimi-

      Too late to turn back. Also, almost everything is with adult stem cells, frequently our own. Even the Vatican supports this. I do believe this therapy is here to stay.

      Peace,
      R.

      • Mimi January 27, 2014 at 4:30 pm #

        We have every reason to expect great outcomes resulting from this therapy. If anything, they are NOT USING MICE. I’m sick of mice.

        You’re not a mouse are you?

  7. Wendy January 27, 2014 at 10:04 am #

    Richard
    I wish you all the best. Could you please tell us what you have to go thru before you get the stem cell therapy? Wondering if it is the same as a stem cell transplant?

    Wendy
    Hugs and Best wishes

  8. Matt February 24, 2014 at 3:03 pm #

    When does the re-injection of cells happen?

  9. Jon Chandonnet April 18, 2014 at 3:21 pm #

    I’m a little late to the game, but wanted to say thanks for the hope! I am out in LA and would love the opportunity to meet you some day! You are in my prayers often.

  10. Cindy Brenden December 15, 2014 at 12:31 pm #

    Merry Christmas, Richard ! Thank you for doing this trial. Last year I was glued to your site.

    I have had MS since I was in my early 20′s. I am 57 now. Maybe a little late for all these new treatments to help me. I have hope for the future of M.S. My niece is showing some of the same signs that I had. I can not believe my family thinks she is faking … with all the autoimmune problems in my family.

    You can not change the world… just your own. You have done a pretty good job, my friend. Keep up the good work.

    Cindy Brenden

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