The Great Stem Cell Caper: Part Two

I am waiting, ready, willing and very impatient.  I know the stem cell therapy is going to begin soon enough, but why so long?  The emptiness of the wait is  causing concern.  The demons in my head are dancing.  Generally, I am not a worrier.  But this is as important as it gets.  I was told the stem cells would materialize in about three months.  I had allowed doctors to stick needles in my chest and steal what seemed like half my blood to facilitate the journey.  Then came, well, nothing.  So I started asking questions.

My faith in Dr. Sadiq and Dr. Harris remain sturdy.  The stem cell infusion in late February is not the end of the journey.  I imagine the sky will be clear, the wind brisk that day.  I will take a deep breath and the leap into my future.  Only then will I be heading down the highway to health, or so I hope.  That road will be hazardous.  No dangerous turns or highway robbers await.  I fear nothing but one possible danger along the way.

Disappointment.

25 Responses to The Great Stem Cell Caper: Part Two

  1. Jeff January 27, 2014 at 5:39 pm #

    As always, thanks for sharing.

    I find myself nervous and anxious reading your posts. While I don’t want to set myself up for disappointment, I can’t help my optimism. I am doing what I can to combat my MS (diet, exercise, meditation), but I am eagerly awaiting the day where life can get close to normal for all of us.

    Again, thanks for sharing your journey. It is helpful to see what is really happening instead of having to try to decipher what is published for the medical community.

    • Richard January 27, 2014 at 7:45 pm #

      Jeff-

      All of us move in the dark. I am your surrogate. We are in this together. Try to keep the faith.

      Peace,
      R.

  2. Cindy January 27, 2014 at 7:23 pm #

    Thank you once again for sharing. You’d think they could do it like Domino’s pizza and tell you online which step it’s at 🙂 I’m very excited for you and the rest of us who live every day with the MonSter. One day we will have an answer and a cure!

    • Richard January 27, 2014 at 7:47 pm #

      And the pizza will be on me.

      Peace,
      R.

  3. Debbie January 27, 2014 at 8:36 pm #

    Dear Richard,

    Thank you for sharing all of this information during your journey of HOPE! I must let you know that it has been very interesting, and informative for me to know what is about to happen to you, and what you are hoping to happen as a result. You are opening the eyes of many of us with MS, and allowing us to HOPE for a brighter day;) Thank you for including us as you discover new hope for a cure!

    a MS friend,
    Debbie

    • Richard January 28, 2014 at 9:23 am #

      Debbie-

      It is a privilege.

      Peace,
      R.

  4. James s Nielsen January 27, 2014 at 10:38 pm #

    Thanks so much for keeping us in the loop .Very informative This is the kind of research I’ve been waiting half of my life for! This doesn’t sound like smoke & mirrors. This sounds like a real chance for all of us to get better. This is the big game that we intend to win !

    • Richard January 28, 2014 at 9:25 am #

      James-

      I believe this is the real thing, though the outcome is unknown. Keep the faith.

      R.

  5. Carla January 28, 2014 at 6:00 am #

    Richard,

    I’m sure I speak for many when I scream THANK YOU!!!! Thank you sharimg this journey! Thank you for being a surrogate! Thank you for this blog! I can’t help but believe that victory awaits!!

    Carla

    • Richard January 28, 2014 at 9:28 am #

      I hope you are right. But this is the real thing. I am privileged to be included.

      Peace,
      R.

  6. Amy Corcoran-Hunt January 28, 2014 at 1:18 pm #

    Smarter about stem cells now than I was a few minutes ago. Thank you. Pulling for you and the whole bunch of us. In my dreams I still walk, sometimes bound up the stairs. Gotta believe the day will come.

    • Richard January 29, 2014 at 6:02 am #

      Amy-

      I will be on those stairs, next to you.

      Best,
      R.

  7. Lori January 28, 2014 at 10:16 pm #

    I watched you and Meredith on Dr. Oz discussing the stem-cell treatment. I am so hoping for this to be successful!!! Keep the articles coming….

    • Richard January 29, 2014 at 6:03 am #

      Will do. Thanks.

      Best,
      R.

  8. James s Nielsen January 29, 2014 at 1:26 am #

    Dear Richard I have an appointment with dr Samuel pleasure at UCSF on feb 25. He is primarily a ms researcher. I’m hoping he knows about dr Sadiqs phase 1 trial and see if it’s taking place on the west coast. I would like to be part of it.

    • Richard January 29, 2014 at 6:04 am #

      James-

      Best of luck.

      R.

  9. Amy Corcoran-Hunt January 29, 2014 at 12:09 pm #

    http://www.bostonglobe.com/news/science/2014/01/29/scientists-discover-new-simpler-way-make-stem-cells/EakSV8vc98L1wYqh97F3rK/story.html

    Amazing. If you’re a mouse anyway. But another reason for optimism.

  10. Lori January 29, 2014 at 12:49 pm #

    I have not been diagnosed with MS…but am getting a brain MRI tomorrow as I have been having some strange symptoms for past 4 months. On the one hand, I hope it’s not MS…but then what? I am praying for stem cell therapy to be successful…for all you who suffer with MS….it’s time for a cure….and I believe it’s in stem cells…if not today – then soon!

    • Richard January 29, 2014 at 7:43 pm #

      Lori-

      I believe stem cell therapy is the future, for me or my childrren.

      R.

      • Laurie January 31, 2014 at 1:45 pm #

        Hi Richard,

        Thank you for participating and sharing your journey. Regarding Jasper: Dogs do bark and sometimes it is difficult. But it is how they communicate.

  11. Terri Weiss February 1, 2014 at 5:25 pm #

    Thank you for posting this, Richard!

    I told Sydney, who’s the coordinator, that I’m getting most of my info from you right now — I always have too much going through my head when I’m at the center, either to ask the right questions or to focus enough on the answers.

    Your posts and videos allow me the opportunity to study and evaluate exactly what’s going on. I’m most grateful. : )

    (So who’s Carmen and how do I reach her?)

  12. Michelle Rafanelli February 3, 2014 at 9:36 am #

    Thank you for posting and sharing. I have been hearing about the stem cell work at the center for a long time. I have strong faith that Dr. Sadiq, Dr. Harris and their team will come through for us.

    Michelle

    • Wendy February 9, 2014 at 12:44 am #

      Richard,
      Will you have to go through Chemotherapy before the stem cells are replaced in your body?